Anonymous said: Hi, I'm stephanie from Nigeria, I'm going to be 17 this year. I just wanted you to know, how happy I am to see a blog that inspires people with scoliosis. I have had my brace for about two years, wore it for like only year, I want to continue wearing it again. Hopefully, one day my scoliosis would be gone, but right now I Thank God, mine isn't as bad as some other people's. btw I like your blog name :)
27th March 2013
Anonymous said: Hi, I'm stephanie from Nigeria, I'm going to be 17 this year. I just wanted you to know, how happy I am to see a blog that inspires people with scoliosis. I have had my brace for about two years, wore it for like only year, I want to continue wearing it again. Hopefully, one day my scoliosis would be gone, but right now I Thank God, mine isn't as bad as some other people's. btw I like your blog name :)
19th December 2012
Hi Everyone!
Recently found this book by Bettijane Eispenpreis at my school library. They were giving it away for free so I thought, why not?
I skimmed through it and there’s some useful and informative tidbits! Not to mention some great diagrams and easy to understand definitions and explanations :)
I’ll share ‘em as I find ‘em!
-Edinette
Posted 4 months ago with 7 notes
12th December 2012
Scoilosis - TriHealth
I know most of you are fairly familiar with scoliosis, but if not, this is a very informative link :) check it out if you have the chance!
Posted 5 months ago with 1 note
30th November 2012
Anonymous said: Hey! my name is Diana, im am 12 years old, and have idopathic scoliosis. my curve is 67 degrees on top and 53 degrees on the bottom. I am getting surgury next month and have SO many questions. But my first question is, how did you feel after you woke up after surgury??Hey Diana! Well first of all, I am sorry that you have to go through this and I wish you all the best! I had the surgery last summer and right after I woke up after the surgery, I was still on heavy pain medications so I barely felt a thing. It was weird right after because I didn’t really know what was happening (an affect of the anesthesia) but a few days later, when I got up and walking around, it felt weird. It was a little painful but they kept me pretty comfortable on the pains meds but honestly, I barely remember the pain! If you have any other questions don’t hesitate to ask, you can also talk to me on my tumblr: asleepinthegarden-.tumblr.com I hope you are well! xxxx
-Jennifer
PS. Does anyone else have any stories about your surgery experiences? We’d love for you to submit them to us :)
20th November 2012
Anonymous said: I had surgery three years ago and I still feel a great deal of pain. The doctor is aware and says there's nothing he can do about it. I've tried physical therapy too. My point is, I'm sick of reading about people who feel back to normal after two months. I feel like I'm the only one that still has pain and as much as I try to move on I can't because there's always that feeling reminding me of what happened. I just want to know if anyone else feels this way because I feel so alone :(So sorry to hear, anon :( I’m sure there are others that feel the same way. Perhaps they’ll find something that works for you in the future. Stay strong! Don’t give up!
9th October 2012
Hi Everyone!
It’s Edinette.
I have an update on my own personal story and thought I’d share in case it could be helpful to anyone else.
Yesterday I met with my specialist, Dr. Hembd at the Northern California Spine & Rehabilitation Associates office for my regular check-up to see how things were going.
He walked in carrying my x-ray (above) for the first time and I knew that this appointment was going to be different.
It was my last time seeing Dr. Hembd.
My spine has not changed since I saw him six months ago, and six months ago it had not changed since I saw him two years before.
He told me that my spine is stable, my hips have fused, and my future is only going to stay the same or get better.
I was told I won’t grow any taller (stuck at five feet forever, I guess!) and the curve shouldn’t get worse until I’m in my 50’s and my bones weaken or if I develop arthritis.
It was a bittersweet moment to hear him say this to me.
In four years I have really chagned so much.
From not knowing anything about scoliosis, sitting in his office, scared and confused, to learning to accept and deal with my crooked spine.
My curve is minuscule compared to others but I did experience a few up and downs, and even the slightest sign can cause some problems.
I still continue to wear my foot lift in my left shoe and make sure to do my physical therapy exercises on a daily basis.
Dr. Hembd told me with daily physical activity, maintaining a healthy weight, and being kind to my back, my spine shouldn’t cause me any problems.
He said there was no way my curvature would lessen, nor would my spine ever become straight but if I work hard and stay cautious I’m free to do anything I want so long as I listen to my body’d needs.
There are still a few things that I’m finding difficult to grasp, like how I won’t be able to wear open toed shoes because of my constant need to wear my insert. Or the fact that stripes will never look good on me. But things that I can’t change should never be my anchor. They should never be your anchor either!
I can only hope for all of you to someday get to this point that I’m at now: the moment when you’re in the clear and are told that you can live your life without having to constantly worry in the back of your mind!
I still try my best to advocate for scoliosis awareness and always lend a hand to fellow leaners!
I owe endless thanks to Dr. Hembd, for he has allowed me to embrace myself and taught me that scoliosis is not an impairment. I can do anything I want if I really believe it!
I am bent, not broken.
xox
Posted 7 months ago with 3 notes
7th October 2012
Scoliosis SOS
Just thought your followers may want to know about ‘Scoliosis SOS’.
It’s non-surgical intense therapy which aims to change the way your muscles hold your spine just through physiotherapy. It’s based in London and is private so it’s not funded but it’s a surgery alternative that not many people know about, it’s up and coming.
I’m currently doing the 4 week course, and its already having results!
Help spread the word and to stop people having surgery when other alternatives are available!
Thank you :)
Posted 7 months ago with 7 notes
5th October 2012
Anonymous said: Do you've heard about Callanetics? Does it work for scoliosis?Based on the quick research i just did, i’d say that i’m sure it’d be effective, though it might not necessarily change the position of your spine. However, exercise is very important for people with scoliosis - especially exercising your core muscles - because in adulthood, you don’t want so much of your weight resting on your spine, it’s better to have some muscle to support it. I’d say any type of exercises, be it yoga, pilates, callanetics, etc… Anything that works your core and back muscles is definitely useful! Give it a go :) it could instill better posture as well. I used to do ballet, and while that didn’t improve my actual spine curvature, it helped mask it. :) good luck!
- Nicole
ssoyna said: Hi ! I just wanted to say good luck for you all. With scoliosis, life and everything. : ) I'm a bit shy, almost 17 years old girl from Finland and I have been in two scoliosis surgeries. At first it was really hard to accept but now I think it's the best thing what has ever happened to me. : ) I keep following you : )Thanks for the great message to us and all our followers :) I’m assuming your birthday is soon-ish, so happy early birthday!
- Nicole
4th October 2012
Anonymous said: Hey I just had a scoliosis appt a few days ago and found out my curve is 68 degrees last time i went which was like 7 or 8 months ago it was approximately 34 degrees it doubled. Im supposed to have surgery in 6 months but it will probably be sooner since it is really bad how it doubled in a short time period. I am really scared about the surgery and I basically cry every time I think about it. Im wondering if my back will look better and how scary the surgery is and how to deal with ithmm! personally, i havent had the surgery - i can guarantee your back will look better, scars fade and it will be okay :) im sure your overall performance in life will improve as well. i think the surgery is probably a good choice, and i wish you all the best :) if anyone else wishes to comment, please go right ahead!
- Nicole
26th September 2012
23rd September 2012
scooliosis-spines said: hiya, i just made this blog and i was wondering if you could possibly just post this to maybe help me gain a few followers just to get me started, it would be great if you could, thanks :) xxxfollow her! :)
22nd August 2012
Anonymous said: hiya, i've got scoliosis and i'm gonna have an operation soon because of it, my mum suggested to make a blog, similar to this for people who have scoliosis or had it, but i can't think of any suitable names for the blog, have you got any ideas? thank you :) xxxHey! Well first off I want to say that I hope all goes well and that if you have any questions don’t hesitate to ask any one of us! And that is an excellent idea! :) Umm, I am totally blanking! Maybe some of our followers have some ideas? Any creative people out there? aahaha :) All help is welcomed xx
-Jennifer
28th June 2012
YAY MY ONE YEAR POST-OP IS TODAY!
It has been an AMAZING journey. My life has changed completely for the better. I am so grateful that I had the opportunity to get this treatment and I hope that all of you lovely scoliotics are doing well and are living your lives to its fullest potential because scoliosis is not going to hold us back (sappy alert). Take care everyone xx
-Jennifer xx
Posted 10 months ago with 69 notes
2nd June 2012
June: National Scoliosis Month!
Happy National Scoliosis Month, everyone! Here are a few sources to learn more about this month and what you can do as supporters of the community.
https://sites.google.com/site/wwwscoliosisorgawareness/Home - This is the national scoliosis foundation where you can actually register to be a member of the campaign during this month=
Scoliosis Awareness Bracelets!
On these websites, you can buy scoliosis awareness bracelets for yourself and even just pass them out at school or to your friends to spread awareness :)
http://www.scoliosisnutty.com/wristband-purchase.php:
http://www.scoliosis.org/store/scoliband.php
I hope you all have a wonderful month and make sure you help to spread the word about Scoliosis and do anything you can to help to support the community. Every action counts!
-Jennifer xx
Posted 11 months ago with 14 notes